A series of stakeholder activities is in process to define a priority set of real world dementia focussed outcomes across the disease spectrum and to define what constitutes a meaningful delay in disease progression.
Effective collaboration with international partners in WP2 was undertaken to design and validate three separate surveys and workshop activities. Piloting the surveys has facilitated design improvements and identified potential technical issues, enabling surveys that will increase response rates at final implementation stage. Access to numerous distribution lists and memory clinics for Europe-wide survey distribution has been successfully negotiated. Data collection has commenced in a memory clinic in Girona, European-wide data collection from electronic surveys will commence shortly.