D3.3 Update of potential data sources with RWE data in Europe

The identification and characterisation of the data sources in order to create a landscape of available real world health care data is the first step to providing an understanding of currently available data for the relevant outcomes and outlining potential gaps in currently available information about Alzheimer’s disease at various stages. Since the landscape of data should be sustainable information that is available for the current ROADMAP objectives as well as future research on the various stages of Alzheimer’s disease, it should be documented in an accessible data source catalogue with curation and search features. For that purpose, the existing EMIF AD, DPUK and EMIF EHR catalogues were selected as the preferred repositories, (https://emif-catalogue.eu, https://dementiasplatform.uk), but at the same time taking into account the different fingerprinting needs for cohort type and EHR/national register type data.