D8.3 Brief on findings of ELSI focus groups for a RWE approach to AD
This deliverable reports results from:
- An updated literature review on empirical research into patient and publics attitudes to the secondary use of data. (Initially was completed as part of deliverable 8.2.)
- Findings from two focus groups conducted with people with dementia and their supporters to understand patient and carer attitudes towards the ethical, legal and social implications of a real world data platform for Alzheimer’s disease.