On 5 and 6 December 2017, Alzheimer Europe (AE) hosted its third annual Alzheimer’s Association Academy in Brussels, Belgium. The meeting was attended by 49 participants including representatives from AE member organisations, national Alzheimer associations and industry. Altogether 15 experts presented on various topics during five sessions that focused on:
- The role of biomarkers in the diagnosis of Alzheimer’s disease/dementia
- EU research collaboration on timely diagnosis – Opportunities for collaboration with Alzheimer’s associations
- Patient and public involvement in dementia research
- Real-world evidence in dementia research
- EU programmes and their relevance for Alzheimer’s associations
Altogether three ROADMAP members were invited to speak about their work in the project. The first presentation held by Catherine Reed, one of the projects principal investigators, introduced ROADMAP and its aims. Next, Marieke Dekker from the work stream “Regulatory and HTA Engagement” held a presentation on the use of real-world data and evidence in regulatory and health technology assessments. The last speaker Andrew Turner, co-lead of the ELSI-team, provided insights on the ethical issues raised by big data and real-world evidence projects and how these might be tackled.